-1-
ha ha ha, I just accidentally published a blank version of this. I'll quickly update it with this one done and publish the rest in a bit when I'm finished with it!
-2-
I'm not sure how I published it actually. I suppose I could have deleted it and started over, but why not leave it this way. I am in a rush, so maybe I did something wrong. It's been a long week and it is going to be a longer weekend. I am not working right now, since they changed their minds about the timing. I should start in a couple of weeks. I hope so. It's not like I have other job options at this point though.
-3-
I've thought about other job options a lot lately. I need to stop worrying, pray about it, and let God handle it. Not that I shouldn't try to think of options - but I've thought and thought and there is just one big problem. I can't work anything that prevents me from taking care of R. Child care is a problem, and expensive. To go back to the career I'm trained for, I would have to take some workshops to get back up to date, and take the bar. That all takes money. To go to a new career, I would need to go to school - but who would then take care of R? And who would do the rest of his therapy. We go to 12 hours a week right now, but I do more at home. A lot more. So I'm SAHM by choice AND by necessity... sigh. If the money issue wasn't here, I wouldn't even think about working just now. But the money issue is here, and it's going to be fine. And that's why I need to stop worrying, pray about it, and let God handle it. Be anxious for nothing!!!! (Phil. 4, extreme short paraphrase, my emphasis added!!!!)
-4-
It's test week in Louisiana. They're doing it W-Th-F and then M-Tu next week. It is a long week. Good: No homework. Bad: Testing. My kids will pass easily, but it's a lot of stress.
I wonder what we'll do when R is in grade school? I don't know if he'll even be able to take tests. Though I am a bit more hopeful about that lately. He knows EVERY upper case letter and the numbers 0-10. We are a bit surprised, but we can say "Point to C" and he'll point to the correct letter - no matter which letter we ask him to point at. Whether he knows that they become parts of words or not is unknown at this point, but we'll see if we can teach him eventually!
-5-
There is national legislation right now for autism insurance to be mandated. I'm trying not to hold my breath. I'm hoping that it's better coverage than our state currently mandates... it would be so awesome to have coverage for more people. Though our state has a mandate, if someone works for a national company (like AT&T), that company is not required to follow the state mandate. I have friends in that boat... And they need help too.
We already pay for insurance. A lot. We're just asking for medical coverage for a medical problem.
-6-
We're getting tired from the insurance battle we've been waging for almost 2 months now. They keep saying that they will cover it... but they haven't. Instead, roadblock after roadblock is put in the way. Sigh. Meanwhile, we owe the center a lot of money, and I keep putting it in savings so we can pay it easily. We're told that we will hear within two weeks. If not, we are considering filing a complaint with the state department of insurance.
This is not under the mandate that will go into effect in July. We're currently in open season picking our new insurance that will start then. And trying to figure out how much to put in a medical savings account. It would help if we had a clue about how much they're going to cover starting in July.
Instead, this coverage is through our current insurance's mental health coverage. Because you know how much mental health has to do with autism and lack of speech. But that's how the current insurance is written. They say that they will pay for 26 or 52 visits - and we'd like to have even that much. But no, all we've gotten is the royal run-around, and I'm tired of it.
-7-
Yesterday was World Autism Awareness Day. Lots of articles, lots of coverage... but for us, it was mostly just another day where we got up, went to therapy, worked on mands, worked on speech, tried to help him develop the tools he needs to communicate.
Here is the personal face of autism for us. One that we are very aware of, every day.
One little boy. Age 5. Bright. Happy. Who needs to be ALL that he can be. Who is loved, no matter what. Forever.
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